Thursday 30 Oct 2014

Information and opinions presented here do not always represent the views of the American Heart Association.

What is the #StoryBehindMyScar?

Published: 1:40 pm CDT, August 15, 2012

I’ve watched #StoryBehindMyScar trend on Twitter all day and have been inspired by the many heart survivors who are sharing their stories of trials and triumph. Their scars are badges of honor – reminders that they are stronger than the heart condition that tried to hurt them.

Heart survivors often beat the odds, risen to the challenge and undergone numerous hospital stays, tests and surgeries – and many do it all before they learn to drive.  To borrow from a beautiful blog post written by a congenital heart defect survivor and Heart Warrior, Steve C:

We’ve given gallons of blood, one vial at a time. We’ve fought back against tremendous odds. We’ve been so sick that we’ve scared the world’s best doctors witless… and then amazed them even more when we recovered. We aren’t related by blood, but we are a family… We are people living with congenital heart defects.

So here’s how you can get involved: Share your #StoryBehindMyScar. Feel free to tweet us a photo on Instagram using the hashtag too. And finally, give a shout out to a heart disease survivor.

  • Tony

    I was taking a shower when a sharp pain shot up into my throat and jaw. My aorta had just exploded. 10 hours l8r im having emergency open heart surgery. Thats #howigotmyscar

  • roxanne watson

    Sorry I don’t do Twitter and I can’t provide a picture of my scar because it would border on pornography:).My scar is over one foot long from chest to belly button.I’m proud as heck to be able to be here to share my story.I received a heart transplant in July 2010 when I was 56.On that day I got the gift of life from a 23 year old US Coastguard serviceman who on that day saved my life and 4 other Americans.Thats a true American Hero.You need a story give me and hour LOL

  • Krisleigh

    Tony, what a story. So glad you’re doing much better.

    Roxanne, probably a good idea on the photo – but inspirational story, nonetheless.

    Thank you both for sharing!

  • Theresa

    I’m not a twitter user either and like Krisleigh, I couldn’t post picture of my scar. I was born with Tetralogoy of Fallot and have had three open heart surgeries and have had a pacemaker implanted. My last surgery at age 48 almost killed me. After 18 hours in surgery I spent the next 3 days in ICU with my chest wide open until they were sure the bleeding had finally stopped.
    Does it bother me to wear shirts that display my scar? NO!!! If people ask (and some do) I’m not offended and feel like it’s an opportunity to educate. :)

  • Krisleigh

    Thanks for sharing your story, Theresa. It’s definitely not something to be ashamed of. You’ve fought hard for that scar and can save lives by sharing it with others. Keep it up!